About Me

United States
I am a newly graduated psychology major. I work with people with intellectual disabilities. I am 23 years old. I live in the small town where I went to school with three roommates, another young lady, a young man, and my girlfriend.

Monday, February 14, 2011


The idea of staying up late and sleeping late, like Holly Golightly has unwillingly become my life. Yet unlike Holly, I am not staying up late and going to party's and getting $50 to go to the powder room. I do watch Breakfast at Tiffany's when I can't sleep a lot, and I do wear a sleep mask a lot so that I can sleep in the mornings when its bright.

Everything is Relative

The term "Everything is Relative" really comes into play this weekend. It was a slam-bang weekend. It all started with *drumroll please* going to work at 9 am Saturday morning. I worked for seven hours, and on the way driving home, I actually felt pretty okay. I didn't feel like just coming home and curling into a ball. So I called my girlfriend, and said "Let's do something."

I got home, put some makeup on, and and we got ready to go. Now, this is two interesting things.

The first is putting makeup on. This used to be an everyday must for me. To even go to the grocery store, I was made up. Sweatpants were not for leaving the house. My hair was done. Now, I leave the house looking like I just rolled out of bed regularly. Before this evening I couldn't remember the last time I had a made up face that wasn't for an event like my sister's wedding. My theory back then was that making myself look a little better maybe would lead to me feeling a little better. Maybe it helped some, I managed to get through high school and college that way, although I didn't feel nearly as bad then as I do now. This led me to make a decision. No more slumming. Get up, change out of what I slept in. Brush my hair, and possibly put a little bit of makeup on. It doesn't have to put full fledged eye make-up and fully coiffed hair. It can just be brushed hair, with a little but of eye-liner and mascara. A little bit goes a long way they say.

The second interesting thing is the conundrum of where to go. From not working, there is a lack of money to go anywhere. We could go somewhere just for drinks, but I can't drink for my headaches. So we drove through the city for a bit, hoping to come across something interesting. Then it hit us... coffee! Technically I suppose I am not supposed to drink a lot of caffeine, but this is a rule I really cannot abide by. I am a caffeine addict, I admit, and trying to stop just really isn't an option to me. I like my coffee, I like my tea, I like my Mountain Dew. I am a slug and it gives me that extra push to get me off the couch long enough to pour myself another glass. One time my doctor told me that I should cut back to one caffeinated beverage a day in order to help control my tremor. I was in hell and I don't really feel like my tremor was helped at all.

By about 8:30 though I was worn out and we came home and watched a movie in bed. Despite being utterly exhausted, I didn't fall asleep until about 1am. And then I woke up at 6am, and keep waking up and falling asleep for about 15 minute intervals until about 11 when I gave up trying to get a decent sleep. My roommate and her boyfriend were out in the kitchen and she wanted pancakes, so we had pancakes and bacon, and hung out.

Then my girlfriend and I worked on some household chores-- cleaning and weatherproofing, since I live in and old, old house and it is a cold, cold winter. We had to go to a store to get some items for weather proofing. And here is a problem. I took two wrong turns to get to the store that I have been to many times before and is not too far from my house. I know how to get there. I am not sure what made me get lost getting there, but I find it concerning. I recently changed my medications. I was taken off of my Prozac and Ativan (Lorazapam) and put on Cymbalta 60 mg. I don't know if this is the cause, or if there is another reason. Another problem is that I was trying to take my shower curtain down to wash it and I could not get the shower curtain rings to open; I was not strong enough. I had to have my girlfriend, savior that she is, do it. I am losing strength still. Then another friend came over and we got pizza and talked for a while, and then we played cards until about 11, and then we all went to bed by midnight. Again, I fell asleep around 1-1:30.

Sunday, January 30, 2011

Sunday 1/30/2010

Today I had to go to work again. I was very tempted to call in sick since I woke up feeling bad and off. I forced myself to haul my ass out of bed and go, though, and be semi-peppy throughout the day, despite it being rather difficult today.

I went to work, albeit, running late, and looking like I was running late in sweatpants and a devil-may-care hair style. At least I am pretending it was, it may have just been a not-brushed hairstyle.

I tried to have a laid back day and work, and I was working at a house where this was possible. I made sure that I had some caffeine this morning to jump start my day.

I went through my day, several times being tempted to tell my very understand co-worker that I needed to come home. I really did not want to do this though, and managed to push through. I took an Anaprox at one point and this may have helped mildly, I am not quite sure.

After I left work I went to my parents house for dinner, my dad just got home from a convention across the country. I talked to them and spent about three hours with them, hearing about the convention, talking about work, my upcoming appointments this week, and things of that nature.

I came home, feeling very exhausted, and my girlfriend was not feeling well, which immediately put how I am feeling out of my mind. Things seem to have mellowed now though, the imminent worry of why has passed.

There are some other things from today that have made it not such a great day. Complicated things that I feel like my health has yet again interfered with my life. My girlfriend her application to graduate school, and I have decided not to apply right now. I am extremely excited for her, of course, and I want her to go; it is however a little difficult to watch her so excited about the application submission and starting grad school, when I feel like I am held back. I feel like not going is the right decision for me at this point in time, but right decisions aren't always easily accepted, are they?

Saturday, January 29, 2011

A not-irritating image...


I found this image called "headache" online that I really like. Normally pictures that are supposed to reflect headaches drive me crazy and make my headache worse. This one I thought was interesting though.

Friday 1/28/2011

Today was a long day. I work at different houses and I worked at the first house from 8am to 2pm. I worked at a second house from 2:30pm to 10pm. It was very long considering I am used to working 2 eight hour days and 1 7 hour day a week. But I made it through it.

My head was okay... around 5 I needed to take an Anaprox, and I made sure to drink a lot of water throughout the entire day. I just tried to be calm and not be tense throughout the day.

My back and arms were troublesome, and in a lot of pain. That could have been because I had to shovel out the company vehicle from about 8 inches of snow that was plowed in. Or it could be the possible fibromyalgia. Or it could be a combination of both.

I have an appointment this week with the headache center and I am going to talk to them about lowering my dose of Topamax. I am at 200 mg and I am finding cognitive problems with it. I lose words; it took me two minutes to think of the word for vest, which I believe I wrote about. I also keep mixing up colors. I asked my girlfriend to pass me something that was green... when there was nothing green nearby. I mean the orange object that was sitting next to her and was quite frustrated when she didn't know what I was talking about. At another point I mentioned my orange sweatshirt, when my sweatshirt was a golden color. My tremor is also quite bad and I would like it to either stop or at least be more manageable.

I found a new website called Medhelp.com (www.medhelp.com). Here, you can use many kinds of trackers, weight loss trackers, and symptom trackers. They have one for migraines that I am going to try to use, perhaps it will be a little easier to use than the old pen and paper, and it charts your progress, much better that I would be able to do.

PM meds taken, 1 Anaprox taken.

Wednesday, January 19, 2011

Tuesday 1/18/2011

Woke up feeling great, spent the day with one of my good friends, out, running errands. Came home, worked on the disorganization in my life, still feeling good, tired, but good. My girlfriend got home and we went to her mom's house and talked a bit and then we ran some errands as well. We came home and worked a little bit and then went to bed.

The day overall was very laid back. But it was an extremely great day because I good throughout the entire day. I had a lowgrade headache through the entire day. Nothing major. I wasn't worried about anything, I was mostly just living in the moment.

AM vitamins taken, afternoon vitamins taken, PM meds taken.

Monday, January 17, 2011

Sunday 1/16/2011

This morning I woke up in time to get ready to go to a breakfast for my sister and her now-husband (well, sort of... they were already married, but its still fun to say since they just had the big wedding). My mom, dad, and I all went to the breakfast.

My sister leaves to return to Miami, which is about 1100 miles from me. So I seized the opportunity to talk to her before she had to leave.

I came home and then packed some stuff and my friend picked me up and I went back to my apartment. My girlfriend and I have been having disagreements about this. According to her it is good for me to be back at my apartment, but for some reason I do not want to be there; I have been resisting staying at my own apartment and have been wanting to be at my parent's house. My girlfriend is probably right though; I should not be staying in the safety net of staying at my parent's house. I should be on my own, forcing myself to know that I am capable of making it on my own.

My friend stayed and hung out at the house, and we sat in my room; my friend, my roommate, my girlfriend, me... listening to records. It was awesome and made me feel very relaxed. We then watched some tv and went to bed. Just a relaxed evening. At one point I was sitting on the bed, chewing, and all of a sudden there was a horrible, shooting pain down the right side of my face, over my eye. And then it felt like my eye was swollen shut, even though it was not. My eye feeling like it is swollen shut is common lately, although my eye is not. Putting ice on it can help somewhat, even though I am not sure what it does.

It was nice... with the stress and hustle and bustle of the wedding weekend over, to just have a no pressure evening... and the headache barely got in the way of the day at all.

Oh yes... a response to comments... thank you for that comment by the way, Brooke... I love comments...

Pain relievers can very easily cause rebound headaches, some more quickly than others. Many people who come into the headache clinic first get the diagnosis of the original headache, and rebound headache, before the detox from the pain relievers they are on. I did. I had to get off all the pain relievers all I was on, in my case, Darvocet. Here's some basic information from the Mayo Clinic. ()

Sunday, January 16, 2011

Saturday 1/15/2011

Today was my sister's wedding. Congratulations to my sister and my now brother-in-law!

I had to be at the reception hall at 10:30 this morning, to get ready. This is about an hour away from my parents house, where I stayed. I woke up, feeling okay. I rode with my mom. We started getting ready and my sister and the other bridesmaids arrived (I was the maid of honor).

Throughout the day I was feeling okay, it was really a lot of feeling up and down. I was out of it for a majority of the day, zoning out not really fully paying attention to what was going on, which I feel bad about. At one point, my migraine was getting quite bad, and my eyes were tearing and it was just getting very bad. Fortunately, this is before we were at the church and there was really anything that was too much expected of me. My sister was so sweetly very concerned about me, in the middle of all the hustle and bustle. It was at this point that my sister was putting on her wedding dress, so really it is not inconceivable that I would be tearing up. She was so beautiful.

I broke the Headache Clinic's rule of no pain reliever's and took Tylenol with Codeine, and that helped a lot. I started to feel more functional. It is a little bit frustrating that I had to go so prepared. In my pretty silver clutch there was packed: Tylenol with Codeine, Anaprox, B6, Magnesium, Petadolox, Syringe with Alcohol wipe, and Toradol. Just in case. Then it was time to go to the church. It was a full catholic service (my sister is catholic, I am not). My sister was beautiful walking down the aisle. I was able to sit and stand through the entire service without trouble, and for pictures after.

Back to the reception hall, which was a beautiful estate. Gorgeous. I was okay, and I decided to be proactive with the Tylenol, when I felt it fading and wearing off, I would take more, rather than waiting for it to stop working completely. I didn't want to be at all problematic at my sister's wedding.

I sat near someone at the reception who was a headache in and of himself, but a gin and tonic, rearrangement of seats, and a short dinner solved that. Beef wellington for dinner. Then there was the first dance and dancing. I decided to try to enjoy myself and dance, which is atypical of me. So I danced, fast songs and slow songs with my girlfriend. Eventually I reached a point where I knew I was about to fade. Fast. So I packed up and my girlfriend and I left. Turns out to be a good thing because I did fade very quickly. We needed to stop by the other car on the way out to pick up my GPS and there, I threw a fit because I couldn't find something, which tends to happen with my headaches.

Overall though, I couldn't have asked for a better day. It was beautiful; my sister was beautful. I felt as good as could as been hoped for. And my sister genuinely seemed happy if the beaming is any indication.

AM vitamins taken, afternoon vitamins taken, PM meds taken, 4 tylenol with codeine taken, 3 B6 taken over the course of the day.

Intermission

My internet has been down and I haven't been able to post anything for a while, and honestly, I don't really remember enough to post the past few days, so we will just skip that.

Tuesday, January 11, 2011

Woke up around 6 with

Woke up around 6 with thoughts just swirling violently around my head...

Monday, January 10, 2011

Monday 1/10/2011

Woke up this morning, again feeling horrible. Sat around for a while, doing nothing, until it was time for me to get ready to go to the chiropractor. I got to the chiropractor at 10:15, and it was a follow-up appointment, which meant that there were a lot of tests and such that needed to be done.

So there were flexibility tests, muscle tension tests, X-rays done to see my progress. In the X-rays, which were the only tests that the chiropractor looked at immediately, he was very happy to see the my atlas, or my C1 vertebrae, my very first spinal bone, which was at a 30 degree angle when I first went in, is now at a fifteen degree angle. So there is only fifteen more degrees left to make it at the proper angle it should be at. (http://www.upcspine.com/anatomy2.htm)

I had a regular adjustment after doing my exercises. A lot of extending my neck and getting pressure off of my neck; decompressing my neck I believe he said. I did feel a little bit better after going to the chiropractor. We were there for quite a while through all the tests and the exercises and the adjustments though.

I filled out forms for the update exam for the chiropractor, and in a lot of ways, it just reinforces in your mind how much life, even small things, can be taken over. For example, "Dressing" "Unaffected...Painful... Limited... Not Able." Break this down; I once was a relatively vain person who put a fair amount of time and effort into what I was wearing, my hair, my makeup, just my look and wardrobe for the day. Now, I essentially live in sweatpants, never have makeup on, and barely comb my hair. It's not necessarily because its too painful to get dressed, although, I am in pain and if I can be comfortable in one area I feel like I should be so the sweatpants are a help there. But also, I think to myself, "what's the point? I feel like hell, why bother not looking like hell too?" So really, the pain has limited dressing. I am able, but not unaffected. So I check the limited box.

We went to the apartment to pick some stuff up to stay at my parents house for a majority of the week, until my sister's wedding.

We came back to the house, and tried on everything that we needed to try on for the wedding.

My mom's friend came over in the evening, and everyone sat around and talked.

Ate oatmeal at the apartment for lunch, pizza at the house for dinner. Pain was at a fairly constant 7 all day, both head and body all over.

Took AM vitamins, afternoon vitamins, and PM meds, with no other pain meds taken throughout the day.

Sunday 1/9/2011

Woke up with still a horrible headache, and just horrible all over. My pain was an 8 all over; head, back, legs, the like. My vision was blurry. I called work, and told them that I wasn't able to come in. I went back to sleep for a while.

I woke up and came downstairs and had some coffee. I watched some TV. I took a bath and then was couch bound again and watched some more TV. My girlfriend forced me to eat some; some toast and then later some ravioli. I spent most of the the day on the couch watching Lifetime movies. Who knows if the Lifetime drama did anything to make the headache go away. Maybe it just made me feel more depressed. Or better that I didn't abuse my parents or wasn't abused by my parents. It's hard to tell.

Around 1:00 I did an injection of 1 cc of Toradol. This didn't really seem to help at all.

I had to cancel celebrating Christmas with my girlfriend's dad and stepmom because of the headache being very bad. Work and social plans interfered with again.

I went to bed around 10. I tried to read for a bit but gave up on that after a while.

AM vitamins taken. PM meds taken. Forgot my afternoon vitamins. 1 cc toradol taken around 1 pm.

Sunday, January 9, 2011

Saturday 1/8/2011

A slow morning. I did yoga in the morning, didn't eat breakfast. I had a turkey sandwich in the afternoon. I got ready late and went out with my mom and family friend. I did not feel well for a majority of it; my head felt very bad and my back felt very tired. I got some coffee while out, thinking that maybe some caffeine would perk me up. No go.

After we were done shopping (for what was needed for my sisters wedding this coming Saturday), we went back to my family friend's house and ordered dinner. My girlfriend met us there for dinner. :)

My right eye started to feel like it was swollen, which has been happening more frequently lately. I put ice on it, which helped a little but, but not significantly. My girlfriend and I came home, to my parents house, where we are staying for a little while. I promise, only for a little while.

Once home I took a bath and washed my hair, which can also help somewhat. I did an injection of 1 cc of DHE, 1 cc of Droperidol, and took 1 Anaprox pill. I had taken 2 Anaprox pills previously during the day, without much success.

I went to bed, around 10 pm, and took my nighttime pills. I took my AM vitamins, and took my afternoon vitamins during the day as well.

Saturday, January 8, 2011

Saturday 1/8/2011 Catch up

One week down of the new year and that whole blogging regularly didn't go as planned. So here they are, some New Years resolutions...

1) Blog and keep track of the migraines and how I am feeling. Even when I am feeling good. I read "All in My Head" by Paula Kamen recently and she commented on looking back over her decade of headache ridden life that she really did have good memories although it seems like in daily life it sucks moment to moment. So I am going to try to keep that in mind.

So 2) Keep in mind that it doesn't suck all the time. Even when it seems like it does.

3) Do yoga. Somewhat regularly.

So to catch up from this week...

In medication news: The supplier of my 20 mg fluoxetine was changed (from Teva to Sandoz), and I was having symptoms that were similar to when I did not take my fluoxetine, when I did not take my fluoxetine when I was 16. So there were phone calls between the doctor and nurses to call prescriptions to a different pharmacy that uses the old supplier, and I now have my Teva fluoxetine and hopefully things will settle down. Also, I had an appointment with my headache specialist, and I was taken completely off the Verapamil. I was down to 40 mg, and she wanted to see me at something closer to 100mg for it to actually be effective, but I couldn't tolerate it. I was having dizzy spells. There is a little bit with withdrawal, but it is not too bad.

I have been in quite a bad mood, angry and depressed and anxious. I am throwing things, picking fights with people, and then crying if anyone is so much as irritated with me. Why people put up with me I have no idea.

Saturday, January 1, 2011

Saturday 1/1/2011

A new year, and a new attempt at blogging regularly. Let's try this again.

Woke up around 9:15 today, after an uneventful New Years Eve. I fell asleep on the couch watching a movie, and my girlfriend woke me up one minute before the ball dropped in New York. I watched it, had a sip of sparkling cider, and went to bed. Happy New Year.

I read for a while after waking up, drinking coffee, waiting for people to wake up. My back and legs and neck were extremely sore. I think someone came into my room during the night with a baseball bat and beat me in my sleep. Hoping to relax a little bit I took a bath. That made me feel slightly, yet insignificantly better. When I was done I read some more, and then people started getting up. I had some breakfast, then talked to people for a while, just sitting in the kitchen, chatting.

It was very important to me to organize my room, and try to get my room organized for the new year; start the new year organized and orderly. So my friend and I spent a better part of the day trying to clean and restore order to my disaster of a room. We took breaks, although it still exhausted me and I still felt horrible for a vast majority of it.

However, I did it, not very productively, but did get some stuff done. I ate dinner, sat online and talked to some people.

AM vitamins taken, afternoon vitamins taken, PM meds taken. 4 Aleve taken in AM.